Sunday, September 23, 2012

A Happy 32

Yesterday I celebrated my 32nd birthday.

It was probably the lowest-key birthday ever, and I am absolutely okay with that. Justin had to work, so we celebrated together last weekend with a much needed date night and ended with him going to an urgent care clinic for treatment for MRSA (don't worry - he's fine now). On my actual birthday, the two kiddos were as marvelous as ever...and even synchronized their nap schedules (a much surprising rarity, given that Xavier sleeps almost all.the.time) so that I could have a moment of peace (which was happily spent cleaning and organizing). My parents came in the afternoon so that I could run errands and make it to Mass before a scrumptious dinner of pancit, ribs, egg rolls, and (as per tradition) ice cream cake for dessert. Thanks, mom!

For the first time ever, I don't think I took a single picture of my birthday celebrations. So, instead, I'm including some pics from our latest family photo/Xavier's newborn/Lissie's 18-month photography session. Because, really, that was the best gift.

The gift of my family all under one roof.

Sunday, September 9, 2012

Dear Lissie - A Year and a Half

Dear Lissie,

18 months already?!? It's hard to believe that you're now inching closer to two than you were to one. I've even started doing some research in where we can have your second birthday party. It's not too early to start planning, right?

In the last six months, you have grown so much. Daddy and I can't believe how much of a "kid" you are, and how the "baby" in you is starting to fade away.

You toddle around all over the place and are curious about everything. Your vocabulary has increased, and you understand a lot more than we want to believe. And you've become a wonderful big sister and an excellent mommy's helper.

In fact, when Lola was taking care of you and your brother yesterday, she had to tend to a fussing Xavier. You tugged on her pants, and Lola was going to tell you to wait and be patient, until she looked down and saw that you were holding up one of Xavier's diapers as if to say, "Here - this might help him stop crying." It made my heart melt to hear that you wanted to help your Lola and brother.

I'll admit that I was worried when we brought Xavier home a few weeks ago because I didn't know how you would react to the new baby. Especially since your reaction when we placed him in the car seat next to you was less than thrilled.

But I couldn't have asked for anything better. You've been so good to him and patient with me. Sure, when you were sick last week you wanted my attention a little bit more, but overall, you seem to really understand what it means to be a good big sister. Thank you, sweet girl, for being so caring.

I am truly blessed to be able to stay at home to watch you grow, learn, and discover. You can identify several body parts. You love to pretend play. You enjoy coloring and playing with play-do. You love building things with your blocks and then making them go "boom." You've mastered your shape sorter and stacking toys.

Happy half birthday. I can't wait to see what you're going to be up to next. I love you so much.

Love,

Mommy

Wednesday, September 5, 2012

Happy "birthday," Xavier!

My trusty Cozi calendar informed me that today is Baby #2's birthday. I had programmed the event way back when I thought we were having a scheduled C-section, and I never changed it after Xavier was born. At first, I was confused when I saw the event alarm because I thought someone was playing a weird joke on me. Then, when I realized what today was, it made me a bit sad since, if Xavier had been born as planned, things would have been so different. We wouldn't be off to constant doctor's appointments and worried about his continued health and growth or making sure that everyone who we encounter hasn't been sick or smell of smoke. But, alas, he is over two months old now, and I am just happy that he is home with us and doing well.

When Lissie was born, she gave her version of her birth story. So, today, on what would have been Xavier's birthday, I present….

Xavier's Birth Story, as told by Xavier.

I was really comfortable in my uterine hotel. I loved to do flips and kicks to make sure my mommy knew that I was having a blast in my temporary home. I was looking forward to growing and developing for another couple of months before seeing my family face-to-face.

But something really strange happened right before I was born.

Things just didn't seem right. Something must have been going on outside. Mommy didn't seem to be feeling well and, as a result, I started to not feel well, either. I could hear lots of voices - people telling mommy to breathe and wake up - and I kept hoping she would listen to them because if she was okay, then that would mean that I'd be okay, too. Soon we got whisked away in a car that made loud siren noises, and mommy was trying very hard to explain to the man that she was feeling weird stomach pains - contractions, perhaps- and that it was difficult for her to stay awake. They kept poking and prodding her so that she wouldn't go to sleep, and that got really uncomfortable for me, too.

Soon enough, they wheeled us into a different place where even more people were coming up to mommy, trying to make her feel better. They hooked her up to a machine so that they could feel me and see how I was doing. I tried my best to do well, but I must not have done a very good job because the doctor told mommy that she was bleeding in her uterus and, as a result, I was not in good shape. They needed to do an emergency C-section to save both mommy and me.

I was scared. I still had two and a half more months left in my cozy home, and I wasn't sure if I had what it takes to survive in the outside world yet. I know mommy was scared, too. She kept crying and trying to convince the doctors and daddy that she was actually okay and was ready to go home. She didn't want to hear about the possible need for transfusions or that the staff in the NICU was excellent and would provide me with the best care.

Soon enough, though, mommy had to say a tear-filled good bye to daddy and was taken to a special room to get ready for surgery. Because of the suddenness and severity of the situation, she needed general anesthesia, which meant that a few moments later, when I first made my appearance, she wasn't able to see me and say hello. In fact, I was so startled by how fast everything was happening, that I totally forgot that I need to breathe when I enter the Outside World. The doctor had to perform CPR before I finally figured out how to breathe on my own. I don't think I did it well, though, because they immediately intubated me, inserted a ventilator, performed all sorts of tests, and hooked me up to all sorts of things to help me function outside of mommy's safe womb.

I'll admit that those first few hours were very scary for me. I was being poked and prodded by so many people, none of whom were my mommy and daddy. After five hours or so, though, daddy was able to come in and check on me. He took pictures to show mommy because she was still recovering in SICU and wasn't able to visit just yet. In fact, over an entire day had passed before I was able to see and hear mommy. It was such a relief to see her that I didn't want to let her go.

I had to stay in the place they called the NICU for two months. Even though I wanted to go home when Mommy went home a week after my birthday, she told me that it was for the best that I stay in the hospital so I can learn all of the things that I would have learned inside. I had a few scary moments - when I was placed under the bili lights for days on end; when I had my two blood transfusions; when they gave me medication to close the fetal hole in my heart; when I had apnea spells and needed caffeine boosts to make them go away - but, overall, it was time well spent. I learned how to function on mostly room air (although I still need a little bit of oxygen while at home), sleep in a crib (something that took my big sister MONTHS to do), and take bottles (which was really hard for me at first, but once my sucking reflex fully developed, I could eat like a champ). It also gave my sister some time to get used to my presence, as well as for mommy to recover completely before taking full care of two children under two years old.

Now I'm home. And I'm loving it. Lissie is a wonderful big sister. She likes to give me kisses and tickle my toes and fingers. She also tries to feed me cupcakes from her cupcake kitchen and, even though I think it's fun, mommy tells her not to. She makes sure mommy and daddy know when I'm crying, and she giggles with glee when she sees me first thing in the morning.

Mommy and daddy are enjoying having me home, too. They had forgotten how much newborns sleep, and they call me an "easy baby" - much easier than my sister, even. I guess it helps that in the NICU I had to get used to sleeping with lots of lights and noise, so I can sleep pretty much anywhere. Occasionally, I'll make them work hard - like when I made daddy hold me the entire time my sister's godmother and husband visited or the time when it took two changes of clothes and several diapers before I was finally clean enough to be put back in my crib - but, overall, it's been great. I do have lots of doctors' visits on the schedule for the next few months, just to make sure I'm growing and developing well. But fingers crossed, I'm right on schedule and can hopefully be rid of the extra oxygen soon.

So that's my story so far. Even though I made my appearance ahead of schedule and threw my parents for a ginormous loop, I'm a big fighter, despite my small size. And I'm very much loved. And that's really all that matters.

Sunday, August 26, 2012

Dear Xavier - Two Months (Welcome Home Edition)

Dear Xavier,

For weeks, I have been hoping, praying, and crossing my fingers that you would be celebrating your two-month birthday away from the hospital. Thankfully, God is good and answered my prayers. After 60 days in the NICU, you are finally home.

I'll admit that I'm nervous, especially regarding your need for oxygen. After learning how to use the equipment the other day, I have felt very overwhelmed with this added responsibility and how it makes simple things like carrying you up and down our many stairs or even moving you to get your diaper changed quite difficult. Your oxygen concentrator is quite heavy, and there are so many components; and you are just one tiny 'lil guy!

But, after Day One, I feel that even with this added challenge, it is totally worth having you home. Even though we won't be taking any family outings any time soon, except to your various doctor's appointments and your Lola's house, it is totally worth having you home. Despite the fact that we have to be extra careful about washing our hands and staying germ-free around you, it is totally worth having you home.

It was a little sad saying goodbye to all of the good people who have taken care of you for the last two months. The doctors, nurses, and other staff of the NICU have been so wonderful. Even folks who weren't assigned to you have grown quite fond of not just you, but your sister, as well. I had a difficult time writing our thank you note because nothing can express my sincere gratitude for all of them.

Oh, Xavier, I never realized how scary your birthday was for you until I read your discharge papers today. I didn't know that you entered this world not breathing. You needed CPR - 30 chest compressions - immediately. I've always known that you were my little miracle, but I never knew how close we were to losing you before I even got a chance to know you.

And so we celebrate. We had a lovely welcome home dinner with your lolos and lola, and even some special visitors from Michigan. Your Lola Janet and Lolo Ed drove down to see you!

I am pleased to say that even your sister is glad that you are home. After her initial shock of seeing you in the car seat next to her, she has warmed up to your presence and has spent a good chunk of the day giving you kisses and examining your ears, fingers, and toes.

Welcome home, my baby boy. I'm so glad you're here.

Stay healthy and strong.

Love,

Mommy

Thursday, August 23, 2012

Mixed Emotions

Assuming the next few days are uneventful, it seems as if Daddy's Big Guy (who, by the way, is a whopping six pounds, three ounces) is coming home this weekend. For real, this time.

And now I'm more nervous than ever.

I always knew that Xavier would be coming home on oxygen. He hasn't spent more than a day or two without that nasal canula, and he's always needed that extra whiff of oxygen...especially during feeds.

However, I never put two and two together to determine WHY he was on oxygen.

Apparently, my lil' guy has chronic lung disease (also known as bronchopulmonary dysplasia or BPD) due to the fact that his lungs are underdeveloped, which is a common problem in preemies. As a result, he is more susceptible to infections, such as RSV...so much so, that he will require monthly injections to ward such infections away. In the meantime, he needs to essentially be "under quarantine" until his lungs develop new tissue, and he gets stronger.

So all that care that we went through to keep things germ-free when Lissie was a newborn? Well, we have to multiply that to the nth degree. Basically, he's never leaving the house. Ever. Especially with flu and cold season around the corner, I have to be even more careful when I bring Lissie to playdates and other outings, so that I can make sure she remains germ-free so as not to pass anything on to her brother.

And I can't help but think that this is not how I envisioned things. At all.

I'm still supposed to be pregnant. 37 weeks. Every time I see a pregnant woman or a healthy newborn, I end up feeling sorry for myself. I didn't intend for my son to be born two and a half months early. I didn't plan on spending the summer in the NICU. I don't want to have to worry about oxygen levels and germs and being scared that he will get sick and end up back in the hospital.

And, with that, while I'm excited for us all to be under one roof, and I'm glad that I don't have to make daily trips to the NICU, and I am soooo grateful that my son is healthy enough to come home, I am also terrified of caring for him without nurses and doctors just a step away. Especially since he is in such a fragile state.

Not to mention Lissie.

Oh, dear. We've started prepping her for The Big Day by placing her baby dolls in places where Xavier will be, such as the swing or the bouncer. Let's just say, she's not exactly graceful.

Plus she has long since associated Xavier with food (since it keeps her quiet and trouble-free long enough for us to feed him ourselves, so she always asks for "'nacks" as soon as she sees him), and I have a feeling she's going to think that she will get to eat a constant feast since he obviously isn't going away. Yikes.

The poor girl has no clue what's about to happen. And part of me is sad that she's no longer going to be the baby in the house anymore. Which is why we had one last Mommy/Lissie day today at the park.

All of our lives are about to change in a drastic way. And I'm excited and terrified and nervous and sad and ecstatic all rolled into one.

I can do this. Right?

Monday, August 20, 2012

8 Weeks and Anxious

Tomorrow marks the 8th week that Xavier's been in the NICU.

And it is wearing me down.

It doesn't help that I've noticed that Xavier's one of the oldest babies in the NICU. All of the babies that were there when he first arrived have long since been discharged. Every time I see yet another baby leave the hospital, I can't help but feel sad. Of course I'm happy that a baby is healthy enough to go home, but I just wish that it was mine.

It doesn't help that last week the doctor told us that he's doing so well that he'd most likely be discharged before week's end. Well, that week has come and gone and we're still there and, apparently, no one wants to tell us another estimate for when we can all go home.

It doesn't help that nurses have said to me, "Wow! He's been here for a long time!" and "You're still here?" I know they don't mean it in a bad way, but it is still disheartening to hear. It's not like I want to still be in the NICU or can help the fact that he's still there.

It doesn't help that the only reason he is still there is that he has regressed with his bottles and is still getting at least a few feedings via tube. I wish so much that there was some way that I could teach him how to do it so that we can just go home already. But, alas, it is a development thing, and he just isn't mature enough to get the concept down.

He can come home when he has had a few days straight when all of his feedings are via bottle or breast. Every time I hear that they had to tube feed him, I just want to cry because I know that it means that we'll be there for at least a few days longer.

Our home is finally ready for him. The crib is set up. His car seat is installed. His clothes are all washed. All we need is him.

All we need is him.

Thursday, August 9, 2012

Blessed.

This week marks both Xavier's sixth week and Lissie's seventeenth month since their birth dates.

And, yes, I've said it before, but boy, am I blessed.

I'm blessed with two healthy and beautiful (so what if I'm biased?) children. I'm blessed with a husband who loves all of us and does everything he can to provide and care for us. I'm blessed with parents who live nearby and can dote on their grandchildren and help me adjust to my new life with two little ones.

And I'm blessed with dear, dear friends. Friends who made meals for us while we go back and forth to the NICU. Friends who scheduled playdates with Lissie so that she can still feel a sense of normalcy and so I can spend some time with Xavier without worrying if I'm running out of snacks. Friends who call to cheer me up or just check in to make sure we're doing okay.

Yes, indeed, I am blessed.

An update on Xavier: We're onto his sixth week in the NICU, and what would have been his 35th week of gestation. He is now a whopping five pounds, five ounces. He has outgrown some of his preemie clothes. While he needed a second blood transfusion last week, his red blood count is now back to normal, and he is doing great. He is working really hard to master the sucking reflex so he can take his bottles.

He takes about every other meal with a bottle, while the rest are still tube feedings. It takes him a while to get his bottles down, as he sometimes forgets to breathe and swallow, but he's definitely learning and progressing. Once he gets this skill down, coming home will be right around the corner!

And a Lissie update: Let me just say, I love this age. Lissie is such a silly goofball.

She observes every little thing we do and then mimics it. She has her own "chef's kit" so she can "cook" while I'm cooking.

But my favorite is when she found a bottle of shampoo and was pretending it was lotion:

Lissie is also quite the bookworm. She loves to read in the car.

She loves to check out books at the library.

She loves to take EVERY single book out of her book bin and climb into my lap for a story.

She is also starting to get used to this brother of hers. Her favorite things to do when she visits (aside from eat her snacks and play tag and peekaboo with the wonderful doctors and nurses) are giving her brother kisses and pokes.

It's hard to believe that these two kiddos are mine. How richly am I blessed!

Now we just need for Xavier to come home....fingers crossed that it's soon!

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